Living with Cerebral Palsy 🍋🍋

Thursday 17 September 2009

Hospital playgroup

...Found Playgroup hard today at the hospital. Elin and four beautiful boys who all had downs syndrome. Our c.p partner in crime wasn't there. Felt very isolated as the other Mum's discussed how the downs had affected their babies, I could not join in. All the babies were similar in age to Elin. I watched them pick up toys, laugh, sit up, look at things properly , gurgle, chew things. I feel jealous as I watch Elin on the mat, not focusing and swiping her limbs around and choking on her feed not understanding. Hate myself for feeling like this, it's a crap way to feel. It's defeatist. Watched as the other Mum's wondered what was wrong with Elin, not being able to put their finger on it, until one asks. So I tell her and she dosen't know how I cope, she says. It's meant kindly but it makes me feel worse. Crap, crap, crap. The therapists are jolly as ever and I want to pick Elin up and come back to the bubble of our house where Elin is just Elin and nobody pities her or see's how she is 'handling today'. So I do. I don't think hospital playgroup is for us.
SHARE:

4 comments

  1. Much love Ruth...you have a beautiful daughter, and a whole lot of love. There's no room for people who pity you darling. Not when you have such a beautiful daughter and loving family xxx

    ReplyDelete
  2. You'll come across loads of things that will desperately want to try and help, but not all of them will work. From what you've said - no this doesn't sound like it's for you and Elin.

    If anything, I'd guess that what you need is some sort of support network where Elin can interact with other children who have CP and (possibly more importantly) you can interact in person with other mothers who have children that have similar needs. I know there are internet support groups and the like, but none of those are anywhere *near* as good as a cup of tea, a hug and a much needed tissue from someone who really and genuinely understands what sort of things you (and Elin) are going through. Is there anything like that in the local area?

    And if not ... could you set one up?

    ReplyDelete
  3. Awww thanks, yes that would be a good idea. The Hospital put me in touch with another Mum whose son is just like Elin and that is a great support. Will look into setting up something with more people, possibly with a wider area coverage. Am lucky to have a lot of friends and family support too,though. Just sometimes it all gets a bit much I guess ;-)

    ReplyDelete

  4. A GREAT SPELL CASTER (DR.TAKUTA) THAT HELP
    ME GET MY EX HUSBAND BACK, AM SO HAPPY
    My name is LUCY SETHI from USA .I am here to
    give testimony on how I got my husband back.
    My husband left me for no reason 3 years ago.
    He moved in with another woman, I felt like
    killing myself, my life became very bitter and
    sorrowful. Then 1 day, a friend of mine told me
    about a great spell caster that is very good and,
    he said he gave him some lucky numbers that he
    played in a lottery and he won. I didn't believe it
    because I've worked with so many of them and it
    didn't work. He begged me further so I decided
    to try this great spell caster called DR TAKUTA. I
    still didn't believe. I used the spell he gave me
    and the next day I received a call from my
    darling husband Thomas last month. He
    apologized and came back to me. He even gave
    me 10,000USD as a means of compensating me.
    I'm very happy now. please i will advise you to contact him
    now and see for your self his Email is via____
    takutaspellalter@gmail.com or whatsapp him
    through the following contact on +27788634102


    Dr.TAKUTA also cures:
    1. HEPATITIS A,B,C
    2. HERPES 1/2
    3.DIABETES
    4.STROKE.
    5.HIV/AIDS HERBAL CURE, STDS and STI
    6. MARRIAGE COUNSELLING
    7.LOVE SPELL CASTING
    8.JOB PROMOTION SPELLS
    9.MARITAL PROBLEM
    10.MAGIC MONEY SPELLS

    ReplyDelete

Blogger Template Created by pipdig