Living with Cerebral Palsy 🍋🍋

Monday, 23 August 2010


The great divide!

Well, the website is up and running for my ex- university flatmate and good friend Laura Doddington's boyfriend, the awesome Dave's cycle across the great divide in order to raise funds for Elin. I cannot express how humbling this is and what it means to us as a family that somebody would take on such a challenge in Elin's name. To say it restores your faith in humanity would not be too great an accolade. Not only this, but the fact that so many people you don't know have read Elin's story on the website and donated has already caused us to have gigantic lumps in our throats! The site went live this morning and has already raised our beautiful girl 200 pounds. Simply incredible. The funds will be spent on varying forms of sensory equipment, to kit out a sensory room for Elin. Please visit the website to find out more..

Saturday, 21 August 2010

Walker hope....

Bit of a weird thing happened the other day. I had a dream that Elin was walking, and it was lovely because I could feel her walking right by me and holding my hand like all the other kids instead of being draped over my shoulder. I felt ten feet tall. Waking up from that was pretty tough but I soon forgot about my wonderful fantasy until the physio arrived and mentioned that there is a rep coming to the health centre with a special walker and she wants to try Elin in it. It would be to see if Elin could move her legs independently at all in it, cos if she could it would basically 'walk' her around! Very slowly I imagine, but still. They are hopeful because she will kick her legs when lying flat on the floor and it could be a skill that translates to this especial walker. They warned me not to get my hopes up, that she may be too little yet. I am trying not to think about the possibility that Elin could achieve a tiny, minuscule thing like that by herself, because forget fame and fortune, these little steps, that will be so difficult for Elin to manage and yet are what every other parent takes completely for granted, are the things that our dreams are made of now. So I will try not to think about it because I dare not hope that our dreams will come true, I am way too scared of the fall.
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