Living with Cerebral Palsy 🍋🍋

Saturday, 7 January 2012

Happy New Year?

Started the New Year very positively after a poor end to the year frankly. Elin's last seizure was Christmas Eve and despite an ear infection meaning she wasn't well enough to travel to the family Christmas in London on boxing day, she improved greatly once Christmas day was out of the way and we managed a lovely happy and relaxed week before going back to school. Elin has had a smashing first three days back at school but has acquired a cold- probably shock from going out so early in the morning! Last night we had a terrible night and then the inevitable happened- a seizure at lunch time today :-( Can't say I didn't see it coming, she was 'off' last night before I put her to bed. Anyway normally this would be upsetting, as every seizure is upsetting. But this afternoon was the afternoon that we were supposed to be taking both the girls to a special showing of the 'Sleeping Beauty' pantomime at Theatre Clwyd. Elin was dressed like a princess looking absolutley gorgeous and ten minutes before we left she started to have a seizure. It took a long time to stop. I was starting to get a bit twitchy (too long and it's ambulance time) but I think that was more to do with the fact that she had slept all morning so the buccal could not take hold as readily. Anyway Paul and Caitlin went to the Panto (no sense in everyone missing out) and Elin and I were left here feeling very sorry for ourselves. As she is now completely zonked on rescue meds there seems no point in dragging her out in the cold to sleep through a show. It's not even that we are missing the Panto, I am not the world's biggest Panto fan anyway. It's that we are missing the opportunity to do something nice as a Family. The opportunity to do something normal that every other family would take for granted. Also it's that we are missing the opportunity to gather with other families and for me, other Mum's that we don't get to see that often. Mum's who know what you are going through and kids the same as Elin. What I am really struggling to get my head around is that the special showing of the Panto happens one afternoon per year. Seriously WHAT are the chances of that co-inciding with an afternoon in which she has a seizure? That has to be pretty slim??? In siuations like this it's really hard not to feel sorry for yourself, or for Elin. Im trying not to though, believe me. The end of 2011 was a hard time for me and I really don't want to go back there. I really want to believe 2012 will be different and better and that our luck will change. So- deep breath- Happy New Year and let's hope that it actually is.
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