Living with Cerebral Palsy 🍋🍋

Sunday, 26 September 2010

Go away seizure monster!

Increased seizure activity in my little snopple chops this past week :-( Culminated in two fits requiring buccal, one on Wednesday afternoon and one on Thursday morning. Don't think she recovered properly from the seizure on Wednesday afternoon to be honest, which may be why Thursday's fit happened. A perkier girl Friday, then back to being floppy and uninterested in anything on Saturday. This prompted a little visit to the local Children's Ward, to which we have open access (meaning I don't have to go through A and E , I just call up, say we're coming and we turn up. It's an absolute godsend). Luckily the ward was quiet and the lovely Nurse and Doc saw us strait away. I just wanted to get her checked. It's not as though I am a fussy Mum, when you consider her problems. I usually know when something is wrong and we not been to the ward since May, so I felt ok about taking her in and asking them to check her over. They found nothing untoward. I concluded with the agreement of doc that the most likely explanation is teething, which dogs poor Elin to death as she cannot chew anything or put anything in her mouth to relieve it. Lots of tears and crying at bedtime, which hardly ever happens. The sound of Elin crying rips my heart out. So its a good job we had a stockpile of calpol and nurofen!! I felt so bad for her and so frustrated that she cant tell us or show us what's wrong. Lo and behold this morning, in a regular inspection of her gums with my fingers ( a dangerous business) I discovered a tiny bit of a back tooth poking through which hadn't been there before. I knew it!!! Lets hope that explains the increase in seizures, as it so often does, and lets hope the rest of the pesky teeth cut soon! I hope the seizure monster leaves us alone for a bit and goes to visit someone else now!!

Wednesday, 8 September 2010

I'll be your dentiiiist!

First trip to the dentist today! I think Elin must have been excited because she sat brilliantly in her chair all the way there are for a good while in the waiting room before I got her out for a cuddle. She was doing her laugh which is extra loud and can sometimes sound like she is in some kind of pain....I noticed some people doing the 'look everywhere except at the noisy child in the wheelchair' eyes, but I didn't care at all, except I wish they had a good look cos they would have seen that she was laughing and how cute she looked. Anyway, enter dentist call in Elin's name...woah! Hang on a second! He appears to be some sort of cross between George lamb and George clooney! Well ok maybe not quite but he certainly had an air about him and I don't get out much, ha! Elin must have agreed because she flirted her way through the appointment. She noticeably looked around at the halogen lighting and the bright shiny white walls. Super-dentist was amazing. He spoke to her and even stroked her nose -her favourite thing!- without me telling him to. She did one of her best ever flashy massive smiles and opened wide like the best of them and he had a good look. He said her little gnashes were fine and as I worry about aspiration I should brush them without toothpaste, twice a day. Even though she doesn't eat anything orally, her teeth will still collect bacteria and produce plaque, so you have to 'disturb it'. Good job she had a fab new flashy toothbrush for her birthday! I was so proud of her today. Next time I am going to ask if she can have a sticker :-) :-)
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