FYI Anyone with pre-teen kids who need to understand about disability, my friend drew my attention to this book by the massively popular author Jacqueline Wilson. I haven't read it, but there are many recommendations on Amazon. It's about an 11 year old girl, Daisy, who is worried about inviting new friends to her house for a sleep over in case they don't understand about her severely disabled little sister, Lily. I think anything that makes this subject accessible to kids is fab. Nice one, Jacqueline Wilson! http://www.amazon.co.uk/Sleepovers-Jacqueline-Wilson/dp/0552557838 x
PS Elin update- still very dystonic. Managed the first day back at school but had a pretty stiff and stretchy morning, bit better in the afternoon. We are off to see Consultant tomorrow and will be asking (again) for a referral to the Alder Hey movement disorder clinic. Will update then. x
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