Living with Cerebral Palsy 🍋🍋

Friday, 13 July 2018

A dedication.

Q. When is a 1:1 support worker not just a 1:1 support worker?
A. When she is a Lyn.
Next week Elin's support worker at school, Lyn, is retiring. She has been by Elin's side every single school day from 2012, following an awesome grounding by previous support workers Laura and Louisa and has been way more to Elin than 'just' a 1:1 support.  She has been her second Mummy. I can't imagine Elin going back to school in September without her, or rather I can, but I don't really want to because it just makes me cry. We know the rest of the staff at school are fantastic, there is not one person there who I wouldn't gladly hand Elin over to each morning, so Elin is still going to receive the very best care possible and will continue to thrive and have the most fun ever :-) But wow, are we going to miss Lyn.
If you are reading this and you have children in mainstream school you will think I'm nuts. It's just so impossible to fully articulate what having a good support worker for your child with special needs can mean. Along with the head, senior leaders and class teacher, a dedicated 1:1 support who really knows what they are doing can literally create an entirely different life for your child. This is what has happened for Elin in the years since she started school. Maybe my constant praise of the school might seem over the top if you haven't been in my position. It's just a school after all! Except it isn't. It's Elin's second home, it's the only place she goes to without us. She cannot tell us what kind of a day she's had or what she has done. The trust you have to put into the staff and school as a whole is immeasurable. I can't tell you how hard it would have been when she first started, had we not quickly realised just how good the school actually was. A school, though, is just bricks and mortar after all, it's the staff that make a school a home. It was the staff that impressed us most back then, in Elin's first few weeks of school- unwavering support, dedication, commitment and an unparalleled amount of knowledge about children with PMLD. Elin was, and has always been, in safer hands than we could ever have hoped for. So when you have a child with profound and complex needs like Elin it very quickly becomes really hard to see staff as 'just' a head teacher or 'just' class teachers or 'just' support workers, especially with Elin staying in the one class for her whole school career. Actually, they become like a family.
We have always had a combination of amazing staff at Elin's school and I've blogged about it more than once before. This particular post though, is dedicated to Lyn, who has been Elin's constant for six full years now- almost her whole time at school. She has been her rock, her support, her encouragement, her challenger, her carer, her nurse, her physiotherapist, her entertainer, her educator, her second Mum and most of all, her best friend.
It's impossible to give a proper thank you to someone who has cared for your child in your absence like you would. As I've said, obviously the trust involved in handing over your non-verbal, profoundly disabled, tube fed, medically precarious child to someone else for six hours a day is enormous and terrifying. Also, if you get the wrong relationship everything for both the family and the school can be very difficult. We are indebted to Elin's head teacher back in 2012 for pairing Lyn with our girl. It was a match made in heaven. From the word go Elin loved Lyn with all her heart and I think the feeling was mutual. Most importantly, Lyn, in addition to the love and the cuddles and the fun, has also has consistently refused to sit back and accept mediocrity where Elin's learning was concerned. She has pushed her way more than I would have thought possible, knowing what Elin was capable of. This has led Elin to achieve, over the years, the many targets set for her by her teacher and has made all of us prouder than we ever could have imagined. Lyn just has never, ever given up on her and believe me Elin can be really hard work-especially in the older, horrendously dystonic days. The girl we have now is completely and utterly different to the girl who first went to school aged two. She has improved in herself and is now doing things beyond what we ever could have wished for. A large chunk of this is down to Lyn. I can never thank her enough. But I'll try.
Thank you Lyn.
Thank you for being you. Thank you for your sense of humour, so matched with Elin's (and ours!) Thank you for being there, for constantly going the extra mile, for being so instinctively good at your job and thank you for saying (and meaning!) that you don't want or need thanks for doing your best for Elin. I hope you realise how you have improved her life. Thank you for being Elin's voice, her eyes and her hands and her safety net for the last six years. Thank you for the dignity you have always granted her and for being her ultimate champion and protector. I hope you know what you have given her and what you have done for her.
I hope you know what you have done for me.
As a massive bonus, you also became Elin's bus escort this past couple of years and this was a true blessing. She literally went from our arms to yours and back again. What a lucky girl she has been. What a lucky Mummy I have been.
I hope you enjoy the retirement you so deserve and I know this isn't the end of the story for you and our girl!
Thank you Lyn- my words will never be enough.
Elin and Lyn- Best friends forever :-)


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6 comments

  1. Thanks to Dr Williams I am so mush happy today, I have been suffering from cervical dystonia for the past 8 years now, and i have spent a lot on western drugs which has all proved abortive, i have tried all means in life to become dystonia free , but there was no answer until i decided to try herbal solution and i found Dr Williams online and i contacted him and after I took his medication as instructed, i am now completely free from dystonia within one month of usage, i am so much happy, thanks to Dr Williams for helping me get my life back again without any form of crisis, i promise to tell your name and good deeds to the whole world,if you have dystonia you can always go through his website on dystoniacure.blogspot.com for more information ..

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  2. I recently have some difficult conversations and I did what a lot of people do when they want to know how to do something. I googled it. I came across Dr Williams herbal medicine on blog-site so many people thanking him about his good work. I also have dystonia. I wasn’t running all over God’s creation with every man I could find but here I am. I have felt bad about myself for so many years now because of my dystonia status. I obviously still have some self-accepting to do but I want to thank Dr Williams for everything he have done for me,after taking Dr Williams medicine i was completely free from cervical dystonia within one month of usage, I think what you are doing is so admirable. you have helped me a lot! I want to definitely reach out to you and thank you for your amazing work. You are a good person, and an extremely talented man. You have helped millions with your herbs, and have really inspired me,and i pray you still continue doing the good work.you can also email him on drwilliams098675@gmail.com for help

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  3. I am Karen from Canada, I once suffered from cervical dystonia,for more than 30 years , the doctor told me there was no permanent cure i was given medications to slow down its progress, i constantly felt my health was deteriorating as i constantly had jerky head movements and muscles contract ,this ailment was really terrible especially when am going out with my friends, i have this constant disorder for about 30 years, this was really a terrible ailment ,on thin one day that i was going through the internet,and i came across a post of Mrs Jessica on how her daughter was been cured from cervical dystonia through the help of Dr Williams herbal product, I contacted this herbal doctor via his email and explain everything to him and make purchase of his product,few days later he sent me the herbal medicine through courier service, when i received the herbal medicine, i used it for 1 months as prescribed by Dr Williams and i was totally cured within those week of usage,on thin now i have not experience any sign or characteristics again for more information you can email him on drwilliams098675@gmail.com for help

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  4. As a sign of gratitude for how my son was saved from dystonia , i decided to reach out to those still suffering from this.
    My son suffered dystonia and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony of so many people who was cured from dystonia and so many other with similar body problem, and they left the contact of the doctor who had the herbal cure to dystonia . I never imagined dystonia has a cure not until i contacted him and he assured me my son will be fine. I got the herbal medication he recommended and my son used it and in one months he was fully okay even up till this moment he is so full of life. dystonia has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony .

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  5. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DONE FOR MY DAUGHTER?
    My daughter suffered from dystonia for more than 7 years which we started experiencing in her when she turned 4 year and 5 months we all thought it will end but got even worse as days went by. We tried all several treatments and therapy prescribed by various doctors we met but to no avail, she lost total concentration and always complain of neck discomfort . She usually tells me she haves jerky head movements . This were steady disorder that disrupted her entire life, even at night she slept less because of this.It was during a casual conversation with a friend that i learned about Dr Williams herbal medicine I was able to contact him on his email address. and give him all the necessary information that he needed,few day later he sent me the herbal portion and his medicine was able to restore her back to normal and she is very okay now without any side effects whatsoever. If you have dystonia , do not hesitate to contact him on drwilliams098675@gmail.com for advice and for his product. I hope this also helps someone out there.

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  6. ALL THANKS TO DR WILLIAMS WITH HIS HERB MY WIFE WAS COMPLETELY CURED FROM DYSTONIA.
    Is my pleasure to comment on this site and i thank the admin of this site for his/her great work so far.one of the happiest moment in my life was when the doctor confirm that my wife is been free from this illness. this awesome moments makes me the happiest man on earth, I really don't know how to thank DR WILLIAMS for helping my wife get cured for over how many year of suffering from dystonia. i came across DR Williams contact through a headline news on internet about how DR Williams help a woman to get cured of her dystonia and so many other with similar body problem ,i contacted him and he told me how to get his herb,few day later he sent me the herbal portion which my wife take every morning for 28 days, and his medicine was able to cure her completely from dystonia. and now she very mush okay without any side effects whatsoever, If you have dystonia, you can contact him on his email address drwilliams098675@gmail.com for advice and for his product.

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