Living with Cerebral Palsy 🍋🍋

Tuesday, 27 April 2010

The first time..ever I saw your face....

The news from Opthalmology is good. We went to Alder Hey yesterday and the consultant is very pleased with her vision developments, however small. She can now follow a light for a period of time and look toward a light. She also responds to lights being turned on and off in the room and to me putting my hand in front of her eyes then taking it away again (she LOVES it, it makes her laugh her head off). He admitted that when he first met us last June he thought Elin was completely cortically blind (where the brain damage is so severe that it cannot recognise what the eye is seeing and therefore the child is, for all intents and purposes, blind). He was surprised to discover, after electronic testing, that Elin's brain was indeed responding to some of the eye tests they carry out, and that some images were being transmitted through the pathways in her brain to the cortex (which is the receiver at the back of the brain). He was sooo pleased with her it was infectious ;-) He gave us some more 'eye training' tips, which was handy. He also said Elin's eyesight will continue to develop, however slowly, until she is about eight years old. This means then, that there is a chance for her. Though presently she can only see shapes, light/shadow, colours and the outlines of things, there is a chance that one day she will be able to see a little more. Then came the cherry on the day, Elin may be able to see my face. He has seen it happen in children like Elin before. They become able to visibly recognise their parents, where they respond entirely differently to a face they don't know e.g a Nurse. I hope he is right, I hope one day Elin can see my face because there is no face in the world that loves her more and I think she deserves to see it with her own eyes. What a miracle my daughter is ;-)

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