Living with Cerebral Palsy 🍋🍋

Sunday 25 April 2010

Another day another.......seizure ;-(

Baaaaad day today. Feeling very upset as Elin had another fit today- exactly a week since the last one, which is weird since prior to that we had gone 3 months without one. I suppose there is no rhyme or reason to it. Unfortunately this time, we were out in Llangollen. Ended up administering Medazolam in the middle of a pub lunch.great. Kept very calm as Caitlin was with us and I never want her to feel frightened by Elin's condition, I could see her turning away so she wouldn't have to see her sister fitting. It broke my heart to see, she's only 12 it's such a lot to deal with. Found it very hard to relax after that, we had to basically just come home. As soon as we dropped Caitlin off I burst into tears- had been holding it in. Feel like screaming we can't even go out for the afternoon with the girls. It's so hard. Elin still not right, but better now. Hopefully fine after a nice long sleep. The cherry on top of the cake is that this coming week Elin has four hospital appointments- one in Alder Hey on monday, Wrexham Maelor on tuesday and then TWO appointments in the same department on wednesday, one at 11:00 and one at 3:30. Arghhhhhh!!!!! That's seven appointments in a fortnight!!! That's about six appointments too many for my liking ;-(
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