Living with Cerebral Palsy 🍋🍋

Friday, 27 March 2015

Happy days are here again?

It's been a bit of a mixed bag for Elin this week. Back to being very up and down. Another visit to docs on Tuesday with a funny ear and some mild antibiotics prescribed which thankfully so far haven't affected her gut! Elin's dystonia was pretty bad at the start of the week too but I'm happy to report it has calmed down a little and we are certainly getting more smiles this end of the week! Could this signal an improvement? Hope so! 10 days until DISNEYLAND arghhhhhhhhhhhhhh!!!!!!!!!!!!!! Wishing you all a very happy Easter, I will update as often as I can but Disney pics might have to wait until I get back!

Here is a photo I have just taken. Hope the sun stays out for us this Easter!



  1. I was just catching up on your blog and I wanted to mention that my daughters Dystonia has improved a lot since starting Gabapentin. No other med's have made a difference and we were starting the referral for deep brain stimulation but the Gabapentin has made a real, noticeable difference.
    Have a wonderful time at Disney, I hope Elin is relaxed and happy for it! Rosie x

  2. Oh wow thanks so much for the tip, we will deffo ask about this at our next appointment! So glad you have found something that helps your daughter! Very much looking forward to Disney if a little afraid of the unpredictability of Elin (you know what I mean!) Thanks so much for messaging Rosie xxx


Blogger Template Created by pipdig