Living with Cerebral Palsy 🍋🍋

Friday, 12 February 2010

Better and worse....

Just a quick update for all you lovely people who follow the story of my beautiful girl :-)
After another hospital visit last sunday due to her erratic breathing and high temp, she has had a fantastic week breathing wise! I think her nose is FINALLY healing after the operation and the antibiotics the hospital prescribed cleared up the little infection that must've been lingering somewhere and making her feel rotten :-( For the first time in months she is breathing clearly! Cant tell you how happy this has made us. She is also sleeping more normally and back to only waking twice a night (yay!)
However her seizures are not so good, in fact she is having loads of little ones but touch wood no big ones to speak of . The little ones are hard to watch though, her chin wobbles unnaturally or she'll fling out her arm for no reason or her head will shake. I can cope with them when its a few times a day but lately its been every couple of minutes or so :-( Tonight we found a possible cause- a new molar poking through her gum on the left side- new teeth always upset her and this one is a monster. Because she can't eat anything or lift her hand to her mouth, her teeth cut really slowly- god it must hurt her. Anyway Im hoping once the tooth of doom has broken through that her seizures will calm down, then we will be back on an even keel- it feels like we sort one thing out and another problem arises- I feel like shouting 'Give her a break!!' but I wouldn't know who I was shouting at. Tonight I read of a girl like Elin who is 10 years old. She can say 7 words. This sounds like a miracle to me. I would settle for one word. It would be 'Mum'.

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