The new wheelchair assessment went brilliantly. You will remember after her chair breaking we borrowed one from a little friends of Elin's- and we have noticed much more success in terms of sitting since using it. It's called the 'Chunc 45' and I went to the appointment on Monday expecting to have to persuade them to let us have one of our own and perhaps even to fight for it. I needn't have worried. The lovely new O.T agreed Elin looked great in it. It what is traditionally a lengthy appointment, Elin was amazing. She sat beautifully and literally grinned all the way through (see exhibit A). Phew! Our next appointment will be attended by a rep from the Chunc company and we are hoping that it won't be too long before Elin has a brand spanking new are to measure chair :-) Yay!
You have probably deduced I was pretty upset by now. We finally got out of there much later than anticipated and I took Elin hastily back to school. When I got there I had a lip wobble as I showed the staff the evil boots which by the way don't even fit properly (and just in time for her school Christmas party too- grrr!) . I was given a cup of tea and within ten seconds they had me laughing again. Did I ever mention how much I bloody love Elin's school? I think I probably have :-) They promised they would pimp them up with some tinsel or something and I left Elin enjoying a visit from Father Christmas, feeling better.
Well, today Elin came home with a little more than tinsel on her shoes. She came home with this:
Thank you for getting that this was about so much more than just shoes. Thank you for getting that shoes are and always have been my achilles heel where Elin is concerned. No girly Lelli Kelly's, no ballet shoes, no old fashioned mary janes, no cute little wellingtons, no cool converse, no comfy slippers, no pretty pumps. I can't even look at girls shoes in shoe shops- seven years on. Who knows why the little things hurt so much but sometimes the little things are the hardest to deal with. I just want my daughter to have a pair of nice shoes and I have zero control over this. She looks so beautiful and then she may as well have a neon sign hanging over her feet saying 'look at my twisted, poorly, disabled feet everyone!!!' It makes me weep, literally. Always has done, regardless of rationality.
So a few sticky diamante's went a long way today and patched up a tiny crack inside my heart. It's the little things.