Living with Cerebral Palsy 🍋🍋

Friday, 28 October 2011

Not so happy half term

Had been looking forward to half term after the term from hell with all of Elin's problems in the past few weeks. It was looking good, seizure free and full of smiles for two whole weeks at the end of term- great. However my sense of unease began on Monday of Half Term when she slept all day. Then coughed, and wheezed and coughed some more. Slept all morning tuesday, waking only to retch or cough. Got her into the G.P Tuesday afternoon, he confirmed a rattly chest and prescribed antibiotics- yessss! Surely they would sort her out I thought, they usually do. Wrong. Wednesday and Thursday passed in a blur of no sleep and one very poorly, lethargic, floppy sad little girl. Thursday night brought a seizure needing rescue med after a day of strange shaking activity which could not be classes as a seizure as it stopped when you picked her up. This began again on Friday which prompted a visit to the lovely blue angels on Children's Ward and our fave young doc. Slightly stumped by the weird shaking we agreed together - after conferring with two consultants- that she could not be having a seizure as it stopped each time I picked her up. Hmmm. Work than one out. Anyway, was given a new type of antibiotic to deal with the cough and retching and came home hopeful of an improvement. Sadly Elin decided otherwise and had another fit requiring rescue medicine just before bed. Which brings us to now and I fear we may be back on the Ward tomorrow. We have not seen her smile since Tuesday, just look distant and poorly and confused. Never seen her like this. Also added worry that this is not related to her illness and instead is something being caused by the recent change in her Epilepsy medication at which point it's hard to say what to do as she has to stay on the new medicine regime until December. I should be in Edinburgh right now for two nights enjoying a Uni reunion, but cancelled the tickets on wednesday as it became clear she just wasn't getting any better and despite protestations from Paul I just felt instinctively that this was a problem that wasn't going to resolve easily how right was I? So instead I am literally worried out of my head yet again and feeling useless and hopeless. When is Elin gonna get a break?? When are we???

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