Living with Cerebral Palsy 🍋🍋

Friday, 18 May 2018

Drakes in the Lakes!


To go to the Lake District on holiday and not have to wear your cagoule at least once feels like a bit of an exciting rarity. To go to the Lake District and actually experience such good weather that you’re tempted to get your legs out feels like an absolute miracle!! Welcome to our miracle holiday, for our miracle girl, where sunbathing replaced sheltering from rain showers and everything felt just that little bit wonderful. 
This was our home for the week at the amazing ‘North Lake Lodges’ in Aspatria, Cumbria. Totally private, totally accessible and totally somewhere I could pretend I was a rich Californian with a beach house holiday home! We loved it here. This was a holiday we really needed and we could not have been more lucky with the location or the weather. Definitely time to relax. 
Aspatria actually sounds like somewhere in Italy rather than somewhere ten minutes from Cockermouth! Which was fitting since we could *almost* believe we were abroad the whole week, if we squinted a bit and ignored the very British breeze! Oh- did I mention the hot tub? Yes we had a hot tub. Not just any old hot tub either, one that was undercover with twinkly lights at night time and a plasma TV mounted on the wall. It looked like the Starship Enterprise. I know it’s not the 1980’s and I know it’s not Dallas and hot tubs have probably had their day but I LOVE A HOT TUB!! Haha! One I can watch Netflix in too? Erm.. yes please! But the best thing about it was how much Elin loved it too. She went in it loads and it was amazing to have the room in there for her to have a proper stretch out.
Not being familiar with the area at all we sort of flew by the seat of our pants in deciding where to go and what to do, a friendly local recommended the harbour Maryport on our first full day so we happily followed his advice and weren’t disappointed, it was a lovely little place with beautiful views and even an aquarium for Elin to look around! 
Ok admittedly the aquarium was a bit tired-it was no ‘Sealife Centre’ and actually I think the fish shop in the Grosvenor Garden Centre has a bit more to it! But Elin didn’t care that it looked like someone had stored some tanks of fish in their shed and she did get to stroke a Sting Ray and see some neon pink Jellyfish. In fairness they didn’t charge Paul and I, saying they would put us down as carers which was lovely, plus there was a cafe so really what more can you ask? 
I do love a harbour and this one was particularly beautiful I thought. I could have stayed there all day staring at the boats bobbing up and down. I think Elin really liked the different sounds and smells of being close to the ocean too. 
Did I mention it was so clear we could see Scotland?!???? Wow (Yes Elin is wearing Dinosaur pants because she is progressive/doesn't conform to gender stereotypes and Disnosaur's can be for girls too, ok?!? Ummm plus we just really love how pretty brightly coloured Dinosaur's look hahaha) 
On our second full day we took things easy and went for a look around Cockermouth. We found the house where Wordsworth lived, and more importantly than that a gorgeous coffee shop. Wordsworth’s house wasn’t accessible, but I’ll forgive the architects of 1770 for not having the foresight to stick a few ramps and wide doors in when they built it. Elin wasn’t bothered anyway, she’s more of a Dylan Thomas fan to be honest. It was worth a look though, especially the gardens.

The better-than-Wordsworths-house coffee shop. Show me an Americano in the sun and I’ll show you one happy Mummy!
So... maybe you’re wondering about Elin’s dystonia? Well I think the reason why we loved this holiday so much wasn’t just the weather, it was the fact that largely Elin’s dystonia stayed away. This, of course, was amazing given the weeks we’ve had recently. We think it’s to do with the addition of a full length back cushion in her chair, which helps to break her muscle tone patterns. It wasn’t fool proof but was particularly effective when travelling in the car, which made everything so much easier, especially the three hour journey to get to Aspatria. Just brilliant. 
I don’t know about you but when I think of the Lake District this is really what I imagine. This is Keswick, where we haven’t been before and where we would definitely go again. It was stunning.
We even got to take Elin on a 50 minute boat ride across Derwent lake which she LOVED and so did we. Talk about peaceful. I could have sat on it all day!

Elin was so happy here, I think the fact that it was term time really helped as it was relatively quiet. Bliss. 
You can see the boat we went on in the background of the below photo. I love this photo- it looks like it has a filter on but it really doesn't, the light was just so so beautiful. Amazing.
Elin REALLY loves the ducks and geese and all their funny noises! She did great listening. 
The really good thing, we realised, about being in an open plan lodge was that Elin could be with us even when we needed to be in the Kitchen. This is something we will definitely be considering when looking at moving house! So lovely. 
Elin’s (very apt) suitcase is nearly as big as her! This was taken just before we left and Elin was definitely the only one smiling! There’s nothing worse than leaving a lovely holiday! But we will absolutely be holding onto this one for a long time, a rest, re-charge and relax and proof that a change of scenery really can give you a different perspective. Things had started to feel a bit heavy for various reasons lately, but it seems there’s very little a (fairly) dystonia- free week in the sun won’t fix. 
As if all that wasn’t quite enough, Elin sat so beautifully on the way home that we managed to call in on her brand new baby niece. Meet Miss Agnes Beatrice Wendy Drake (sister to Gruff with whom you’ll be familiar if you are a regular blog reader!) Cracking end to a cracking week.

Thank you for your continued interest in our miracle girl.
Hope you had a good week too, folks.
Xxx





























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Tuesday, 17 April 2018

No place like home?

Recently I was asked to write a review of the disabled facilities at Chester's 'Storyhouse' for the fab website 'Euan's Guide'. Euan's Guide is the leading disabled access review website in the U.K. It is an award-winning sight built by disabled people for disabled people and is also a registered charity.
 Euan's Guide aims to inspire people with limited mobility to try new places. The website was founded in 2013 by Euan and Kiki Macdonald, after Euan became a power chair user following a diagnosis of Motor Neurone Disease. Since Euan's Guide uses reviews from members of the public who have actually visited venues around the UK, it means wheelchair users can get an honest cross section of opinion about the accessibility of venues, rather than just what the 'official' websites for said venues state.
It can be frustrating and time consuming to rely on trial and error when choosing where to visit if you have a disabled person in your party. There is quite a distinct lack of information in general on the web regarding places with appropriate disabled access. Also, what works for manual wheelchairs may not always work for power chairs or mobility scooters and many web pages citing disabled access at their venue don't make detailed enough distinctions.
That's another reason why Euan's Guide is so handy, each review clearly states who was visiting and what their specific needs were at the time. As we are going to Edinburgh in the Summer, I will definitely be trawling Euan's Guide to see the recommendations for families in our situation. Euan's Guide states that is aims to remove 'the fear of the unknown' for disabled people visiting a venue for the first time and I think it has definitely achieved this aim with a wonderful vision by Euan and Kiki. It's not until you stumble across something so useful that you wonder why on earth you never googled it before!
Finally, the reviews on Euan's Guide are concise, honest, friendly and empowering. I would encourage anyone in our position to take a look and more importantly to add your own reviews to Euan's Guide, from coffee shops to museums, hotels, shops and everything in between. Sharing your experience might just give someone an invaluable helping hand in deciding where to spend their down-time in the best place available, wherever they are.
Reviews for Euan's Guide are super-easy to write and upload. The link below is my first review for Euan's Guide, of Storyhouse in Chester. Regular blog readers will be unsurprised that I highly recommend a visit! It is my own home away from home and the first place I found that I not only love in it's own right, but a place I can share with Elin too whenever we want to just hang out somewhere as a family. Not all outings have to be about a big mission or a big day out. Sometimes we want to just go and have coffee in a home away from home- somewhere where there is a supportive and accessible environment to simply watch the world go by in. Thank you Storyhouse for providing that for us. Thank you Euan's Guide for enabling us to share it :-)
https://www.euansguide.com/venues/storyhouse-chester-8263/reviews/their-house-is-everyones-house-7271



xxxxx
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