-Lights being kept at a low level
-Lower than usual sound levels
-No trailers or adverts-just the film
-Allowance for increased movements and noise.
These screenings haven’t been something we have always felt
the need to bother with. Elin has historically been ok at the cinema and on the
rare occasion we might have taken her to the theatre, enjoying the experiences
without over stimulation. However as she has matured, we have discovered this
not to be the case. The adverts and trailers (which these days seem INCREDIBLY
loud-or am I just getting old???) upset her. They make her jump and the
surround sound disorientates her. The noise triggers her dystonia and before
the event has even started, she is struggling to focus. The pitch black makes it hard to manage her
physically and tube feeding or medicine administration is especially
difficult. Just recently, a new problem
has reared its head for us. That is, that when Elin becomes over stimulated or
over excited, she gets very, very noisy. She starts laughing so hard it can
turn into squealing. This is actually a
lovely reaction and shows a high level of awareness, which is great. But, did I
mention …its NOISY. This is problematic if it is prolonged, or regular
throughout the showing, because it’s so distracting for other audience members. Now, I’m all for allowing Elin to express her
joy, of course I am. I will fight Elin’s right to
equal experiences despite her disability to the death. But true
equality has to be equality for all. So when Elin gets really, really,
noisy for prolonged periods in a cinema I can start to feel uncomfortable. I
don’t want to interrupt anyone’s fun. More importantly, I don’t want Elin to be
seen as an annoyance or a problem. I also understand that these events are not
just a special experience for us, it a special (and often expensive!)
experience for all other families there too. I don’t believe in Elin’s right to
enjoy herself at the expense of the enjoyment of others. It pains me to say it, but it just doesn't feel fair.
So after a particularly difficult visit to see “The Lion
King” this Summer, where we ended up having to leave, due to little foghorn Drake, we decided that where possible we would only access relaxed
performances from now on. How lucky are
we that this is an option for us now? True inclusion can mean I think, not
lumping everyone together regardless of ability to allow them the ‘same’
experience, but providing tailored versions of that same experience in order to
allow appropriate opportunities, choice and options. Bravo to those venues around the country for
realising this.
This weekend we have been to see the Disney film of the year
and highly anticipated sequel “Frozen 2” . I was really excited because I had
such good memories of the first one, Elin had loved it and it was six years
ago when our trips out would more often be misses than hits, so it had meant a
lot to have a successful trip out. We spent, like most families, the next few
months listening to the soundtrack on repeat and Elin couldn’t get enough. The great thing about Disney films are the
musical numbers and advanced graphics. They are meaningful to Elin and tend to
keep her engaged way more than any other kids films out here. I’m pleased to
report our trip echoed that of our trip six years ago. She absolutely loved it
and sat in her chair the whole way through the film, laughing loads. She didn’t
just laugh at the film, she laughed at the other children audibly enjoying
their experience too. When she began, as she was bound to, getting a little
over excited, we didn’t feel any of the stress of previous performances that she
might be distracting other people. It
didn’t matter.
By introducing these special screenings and making some
simple changes to an ordinary format, the Odeon (and other participating
venues, of which our personal experience extends to Chester's ‘Storyhouse’
theatre too) have given the opportunity for families like ours to have an
extra-ordinary time. Thank you. Sometimes a small change can make a big difference.
"Frozen 1" 2013 vs "Frozen 2" 2019